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Basha73 said:
I had Covid last June. I still have no sense of smell and I am always exhausted. If I try to do anything like gardening etc I am wasted after 5-10 minutes and even if I do very little I can suddenly find myself needing to sleep and there is no resisting it.

I can walk for a while but no more than 10-15 minutes and I will ache for days after any exercise. I have permanent muscle fatigue and can never get enough sleep.

The brain fog is fun too and the bottom third of my lungs no longer work which is interesting.

It was my first session where they assess what I can and can’t do. They were very cautious and listened to me when I discussed my limits. They also kept an eye on me because I told them I could get a tad competitive.

It was through Action Heart and I must admit it was really good but we will see. Nothing has really worked so far so I don’t hold out a huge amount of hope.
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thats crazy, I had covid and tbh still ache daily and just general feel like crap. Problem is I did before covid! I cant tell if its just use/abuse from the military or if I have symptoms of long covid!

I did some cryotherapy sessions and that helped the aches hugely
 
Southern red said:
thats crazy, I had covid and tbh still ache daily and just general feel like crap. Problem is I did before covid! I cant tell if its just use/abuse from the military or if I have symptoms of long covid!

I did some cryotherapy sessions and that helped the aches hugely
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Unless you know what was wrong before you are never sure whether it’s new or just exacerbated.

I remember my lungs not being the best but it feels like they are packing up at times now. I used to do hours of sports but now ten minutes in the garden and I can’t move for hours.

Glad the cryotherapy helped you though… 😁
 
I had been double jabbed and was working from home. I only ever went out to the chemist and the supermarket when I had to.

No idea how I got Covid but I had the paramedics out once albeit I don’t remember much about it. 12 months down the track and I am still mangled…
 
Basha73 said:
I had been double jabbed and was working from home. I only ever went out to the chemist and the supermarket when I had to.

No idea how I got Covid but I had the paramedics out once albeit I don’t remember much about it. 12 months down the track and I am still mangled…
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Was the unchecked schools wot got me. Radz jnr bought it home. Think we were unlucky as we seemed to be the last of the deltas. Mrs radz got reactive arthritis from it and after a shit 6months is slowly coming back, sort of. I had my own issues. Covid has definitely left alot of us a bit mangled. Fortunately radz jnr seems fine the little blighter.
 
radfordinlondon said:
Was the unchecked schools wot got me. Radz jnr bought it home. Think we were unlucky as we seemed to be the last of the deltas. Mrs radz got reactive arthritis from it and after a shit 6months is slowly coming back, sort of. I had my own issues. Covid has definitely left alot of us a bit mangled. Fortunately radz jnr seems fine the little blighter.
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These stories amaze and horrify me at the same time.

Every one I know who has had it, never got worse than a few headaches and feeling tired.
Up and about in 2-3 days. Weird, to say the least.
 
Earlier this week I spent two days at the hospital having various tests and scans etc and they've now ruled out that I haven't had a stroke, I haven't got nerve damage in my legs and feet and I haven't got cancer. I've been officially diagnosed as having long covid and they don't really know how to treat it. Problem is my GP doesn't think long covid is real but the hospital have or are setting up a specialist clinic to deal with it. In the meantime I have permanent pain in my legs, difficulty in walking and have been unable to work since Easter. This all started with flu like symptoms and after 48 hours in bed this more or less passed quickly. Then the leg pains started and haven't gone away. Its a total nightmare
 
John Rotten said:
Earlier this week I spent two days at the hospital having various tests and scans etc and they've now ruled out that I haven't had a stroke, I haven't got nerve damage in my legs and feet and I haven't got cancer. I've been officially diagnosed as having long covid and they don't really know how to treat it. Problem is my GP doesn't think long covid is real but the hospital have or are setting up a specialist clinic to deal with it. In the meantime I have permanent pain in my legs, difficulty in walking and have been unable to work since Easter. This all started with flu like symptoms and after 48 hours in bed this more or less passed quickly. Then the leg pains started and haven't gone away. Its a total nightmare
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Sorry to hear that matey.

It sounds almost carbon copy of fibromyalgia diagnosis.
Drs refused to believe the condition even existed for years. It took the yanks to first identify it in 1987. Yet it effects up to 4% of the population here?
We were way behind the acceptance of that.
It is something that has only fully been accepted as a disability in the last 10 years?
 
Basha73 said:
I had been double jabbed and was working from home. I only ever went out to the chemist and the supermarket when I had to.

No idea how I got Covid but I had the paramedics out once albeit I don’t remember much about it. 12 months down the track and I am still mangled…
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Interesting that the vaccine didn't help - unless it did which even more scary I guess.
 
John Rotten said:
Earlier this week I spent two days at the hospital having various tests and scans etc and they've now ruled out that I haven't had a stroke, I haven't got nerve damage in my legs and feet and I haven't got cancer. I've been officially diagnosed as having long covid and they don't really know how to treat it. Problem is my GP doesn't think long covid is real but the hospital have or are setting up a specialist clinic to deal with it. In the meantime I have permanent pain in my legs, difficulty in walking and have been unable to work since Easter. This all started with flu like symptoms and after 48 hours in bed this more or less passed quickly. Then the leg pains started and haven't gone away. Its a total nightmare
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The fact that your GP doesn’t believe it exists is worrying. If you can I would move…

My GP referred me very quickly but nobody really knows what they are doing. My latest ness we issue is dizziness whenever I change position between standing, sitting and lying down. They have donee red blood pressure testing and it isn’t that so just one more thing to add to the pile.

Just keep your chin up and hopefully the pains will start to ease and/or they figure out what’s wrong…
 
Pearced said:
Interesting that the vaccine didn't help - unless it did which even more scary I guess.
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They reckon it was the only thing that stopped me being hospitalised… Well, that and me refusing to go when the paramedics were here… 😳
 
John Rotten said:
Earlier this week I spent two days at the hospital having various tests and scans etc and they've now ruled out that I haven't had a stroke, I haven't got nerve damage in my legs and feet and I haven't got cancer. I've been officially diagnosed as having long covid and they don't really know how to treat it. Problem is my GP doesn't think long covid is real but the hospital have or are setting up a specialist clinic to deal with it. In the meantime I have permanent pain in my legs, difficulty in walking and have been unable to work since Easter. This all started with flu like symptoms and after 48 hours in bed this more or less passed quickly. Then the leg pains started and haven't gone away. Its a total nightmare
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Sounds like mrs radz
 
Basha73 said:
The fact that your GP doesn’t believe it exists is worrying. If you can I would move…

My GP referred me very quickly but nobody really knows what they are doing. My latest ness we issue is dizziness whenever I change position between standing, sitting and lying down. They have donee red blood pressure testing and it isn’t that so just one more thing to add to the pile.

Just keep your chin up and hopefully the pains will start to ease and/or they figure out what’s wrong…
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The prognosis is good but recuperation time was 6-10 months. 6mths on there is improvement but by golly it has been slow.
 
Basha73 said:
The fact that your GP doesn’t believe it exists is worrying. If you can I would move…

My GP referred me very quickly but nobody really knows what they are doing. My latest ness we issue is dizziness whenever I change position between standing, sitting and lying down. They have donee red blood pressure testing and it isn’t that so just one more thing to add to the pile.

Just keep your chin up and hopefully the pains will start to ease and/or they figure out what’s wrong…
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I have a few loose ends to tidy up appointment wise at my surgery then I'm moving on. I know they're overwhelmed at the moment but the whole practice has just disolved into incompetence. This is why I checked myself into A&E on Monday morning out of desperation. On my last appointment my gp said i needed a blood test. I had to wait 3 weeks for the test and then a further week for the results. So yes I'll be changing GP as soon as I can.
 
John Rotten said:
I have a few loose ends to tidy up appointment wise at my surgery then I'm moving on. I know they're overwhelmed at the moment but the whole practice has just disolved into incompetence. This is why I checked myself into A&E on Monday morning out of desperation. On my last appointment my gp said i needed a blood test. I had to wait 3 weeks for the test and then a further week for the results. So yes I'll be changing GP as soon as I can.
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That is really crap. My last GP Surgery was useless but the one I use now at least try to help.

Problem is that Covid is so new and is attacking the body in ways that still aren’t understood and that seem to be different for everyone.

There are days when I am certain I will never fully recover and I am sure you feel the same. All we can do is keep pushing for answers and hope that something is discovered that can help us.
 
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