kefkat
Vital Football Legend
This is a bit long so grab a cuppa :160:
....................................................................................
First of all I want to say this post is not about slating The NHS has a whole. We are very blessed to have it. There are 1000's of hard working excellent NHS staff, of whom I have friends who work for them.
However, with the situation we have been in recently which became about I/us rather than them it has really hit home what can go on.
Before we go any further I just want to state my husband doesn't drink or smoke. He used too, however can't cos of all the meds he was on. He is not alcoholic and never was.
Most of you know Mr KK has health problems. 30 + years in the building trade, working outside in all weathers, no health & safety and 3 years underground on pneumatic machinery in a tunnel that was shorter in height than Mr KK height has left him physically disabled.
With Mr KK being diabetic, and on alot of strong painkillers long term it has caused liver disease, which was diagnosed in January 2016.
He was told to lose 2 stone in weight, which he did through life style change. He was taken off insulin. He also had 2 hospital stays which for a chest infection the Dr’s couldn’t get under control in April. The other was for pneumonia when we had been home from holiday a week in July.
They also did a lot of scans whilst we were in hospital. They told us that there was some cirrhosis and 2 lumps they were unsure of so they were sending the scans to Jimmy’s in Leeds.
As some of you know we had an appointment, 10 weeks ago, which was horrendous. The attitude, rudeness and flippancy of the Dr nearly damn well destroyed us. It would have some people.
He basically told us they could do nothing, my husband had cancer and he had months to live! He also when I in shock asked about next year’s holiday, was told ‘’that he hoped we had good life insurance’’
At this point I collapsed off the chair and the liver specialist nurse had to carry me out and go back for my husband. The Dr had completely ignored him whilst she was gone which would have been about 15 minutes.
The night from hell ensued. Me being me and once the next day was here, I got straight on the phone to our GP’s, got an emergency appointment, rung our hospital here in York and got an appointment with our Dr here. Then spoke to the liver specialist at lunchtime in Leeds, who laid out that Dr Death (as I know call him) was talking worse case possible scenario and we weren’t in that.
She also gave us more information which I could pull all together. Our Dr’s (which I know some find puzzling as it is unusual are fantastic, emphatic and caring) seen us at the end of surgery appointment. We were with them for an hour. They gave us the list of questions for Dr H here in York.
I put everything together, emailed it through to the hospital consultant so he had a copy. We see him the next Monday and he explained everything at length and why they couldn’t do a biopsy to fully confirm it was C lumps.
We were told Mr KK had to follow a strict diet of high protein/high carb as his body needed to take the energy from his food intake instead of using the organs (liver) to digest through everything.
We then seen the dietitian. The dietitian went through everything with us. It has been stuck too. Apparently, a lot of people don’t. They can’t take a pill for it so they ignore the diet until it is too late.
They seemed more concerned about the liver damage than the lumps. As I told Dr H at the hospital, I was a sober alcoholic of nearly 14 years and I had seen enough of addiction so knew plenty about the liver and that even active alcoholics could live for years with a small bit of liver working.
The hospital was a bit confused by then as my husband bloods had come back right down to what they were last year when they found there was a problem. They had been sky high in the summer.
My husband has been on this diet (6 meals a day so the body lives off the food) 10 weeks now and within a few days we could see the difference. He had so much more energy. He wasn’t falling asleep like he was.
10 weeks on my husband’s bloods are all back down into normal range. The only one that is slightly out is to do with the lipoedema and osteoporosis, which is connected in with the full range of health problems my husband has, not just the liver disease.
My GP said to me the other week again that they would rather say it was cancer than not and it could be they are wrong. Talking to the diabetes nurse the other day she was telling us her sister was diagnosed with the same as Mr KK though told her lumps were benign 6 months ago; now they are saying they might not be.
The good news is Mr KK is in far better health than he has been for a long time. They are now looking after this set of blood tests to wean him off the metformin, so he will be diet controlled diabetic.
Granted a different sort of diet controlled diabetic as he will still have to be on the special diet of high protein/high carb.
Regarding Dr death at Leeds, we put in a constructive feedback, on the advice of our Doctors. This has been investigated and we have had responses back from Jimmy’s. We had a letter of acceptance and apology off Dr death and thanking us for feeding back so he can look to improve. We also had a letter from the head haematologist who had investigated it. Job done. I never want anyone to go through this again is why we did it.
So, that is the upshot of where we are: it is obvious the Dr’s and hospital are beginning to think there may be a mistake made here. How they will handle this is to be seen.
My husband’s bloods are normal (they shouldn’t be) his weight is stable, he has no fluid build-up on his stomach and he is eating normally. Now that doesn’t mean for def Mr KK hasn’t got C however it is looking more likely they got it wrong.
I want to testify to this: that Dr’s can be very wrong, that not to give up hope and to keep going. Also to the fact that clean eating does make a major difference.
Mr KK diet is opposite of what it once was. I despaired with him with the junk he would eat between meals. 90% of everything is homemade (I am not about to put a cow in my back garden etc.)
Juan and JF have always said about the way you eat etc. does make a difference to how you are. This is proof of it
....................................................................................
First of all I want to say this post is not about slating The NHS has a whole. We are very blessed to have it. There are 1000's of hard working excellent NHS staff, of whom I have friends who work for them.
However, with the situation we have been in recently which became about I/us rather than them it has really hit home what can go on.
Before we go any further I just want to state my husband doesn't drink or smoke. He used too, however can't cos of all the meds he was on. He is not alcoholic and never was.
Most of you know Mr KK has health problems. 30 + years in the building trade, working outside in all weathers, no health & safety and 3 years underground on pneumatic machinery in a tunnel that was shorter in height than Mr KK height has left him physically disabled.
With Mr KK being diabetic, and on alot of strong painkillers long term it has caused liver disease, which was diagnosed in January 2016.
He was told to lose 2 stone in weight, which he did through life style change. He was taken off insulin. He also had 2 hospital stays which for a chest infection the Dr’s couldn’t get under control in April. The other was for pneumonia when we had been home from holiday a week in July.
They also did a lot of scans whilst we were in hospital. They told us that there was some cirrhosis and 2 lumps they were unsure of so they were sending the scans to Jimmy’s in Leeds.
As some of you know we had an appointment, 10 weeks ago, which was horrendous. The attitude, rudeness and flippancy of the Dr nearly damn well destroyed us. It would have some people.
He basically told us they could do nothing, my husband had cancer and he had months to live! He also when I in shock asked about next year’s holiday, was told ‘’that he hoped we had good life insurance’’
At this point I collapsed off the chair and the liver specialist nurse had to carry me out and go back for my husband. The Dr had completely ignored him whilst she was gone which would have been about 15 minutes.
The night from hell ensued. Me being me and once the next day was here, I got straight on the phone to our GP’s, got an emergency appointment, rung our hospital here in York and got an appointment with our Dr here. Then spoke to the liver specialist at lunchtime in Leeds, who laid out that Dr Death (as I know call him) was talking worse case possible scenario and we weren’t in that.
She also gave us more information which I could pull all together. Our Dr’s (which I know some find puzzling as it is unusual are fantastic, emphatic and caring) seen us at the end of surgery appointment. We were with them for an hour. They gave us the list of questions for Dr H here in York.
I put everything together, emailed it through to the hospital consultant so he had a copy. We see him the next Monday and he explained everything at length and why they couldn’t do a biopsy to fully confirm it was C lumps.
We were told Mr KK had to follow a strict diet of high protein/high carb as his body needed to take the energy from his food intake instead of using the organs (liver) to digest through everything.
We then seen the dietitian. The dietitian went through everything with us. It has been stuck too. Apparently, a lot of people don’t. They can’t take a pill for it so they ignore the diet until it is too late.
They seemed more concerned about the liver damage than the lumps. As I told Dr H at the hospital, I was a sober alcoholic of nearly 14 years and I had seen enough of addiction so knew plenty about the liver and that even active alcoholics could live for years with a small bit of liver working.
The hospital was a bit confused by then as my husband bloods had come back right down to what they were last year when they found there was a problem. They had been sky high in the summer.
My husband has been on this diet (6 meals a day so the body lives off the food) 10 weeks now and within a few days we could see the difference. He had so much more energy. He wasn’t falling asleep like he was.
10 weeks on my husband’s bloods are all back down into normal range. The only one that is slightly out is to do with the lipoedema and osteoporosis, which is connected in with the full range of health problems my husband has, not just the liver disease.
My GP said to me the other week again that they would rather say it was cancer than not and it could be they are wrong. Talking to the diabetes nurse the other day she was telling us her sister was diagnosed with the same as Mr KK though told her lumps were benign 6 months ago; now they are saying they might not be.
The good news is Mr KK is in far better health than he has been for a long time. They are now looking after this set of blood tests to wean him off the metformin, so he will be diet controlled diabetic.
Granted a different sort of diet controlled diabetic as he will still have to be on the special diet of high protein/high carb.
Regarding Dr death at Leeds, we put in a constructive feedback, on the advice of our Doctors. This has been investigated and we have had responses back from Jimmy’s. We had a letter of acceptance and apology off Dr death and thanking us for feeding back so he can look to improve. We also had a letter from the head haematologist who had investigated it. Job done. I never want anyone to go through this again is why we did it.
So, that is the upshot of where we are: it is obvious the Dr’s and hospital are beginning to think there may be a mistake made here. How they will handle this is to be seen.
My husband’s bloods are normal (they shouldn’t be) his weight is stable, he has no fluid build-up on his stomach and he is eating normally. Now that doesn’t mean for def Mr KK hasn’t got C however it is looking more likely they got it wrong.
I want to testify to this: that Dr’s can be very wrong, that not to give up hope and to keep going. Also to the fact that clean eating does make a major difference.
Mr KK diet is opposite of what it once was. I despaired with him with the junk he would eat between meals. 90% of everything is homemade (I am not about to put a cow in my back garden etc.)
Juan and JF have always said about the way you eat etc. does make a difference to how you are. This is proof of it
