Little Charlie Gard

kefkat

kefkat

Vital Football Legend
Horrific: I don't know what I would do if it was my baby! I wouldn't wish their circumstances on my worst enemy.

Once in a lifetime a woman I can't stand surprises me and writes an article which I think would sum up how every parent feels, thanking God it isn't our children, nieces, nephews, loved one etc. baby tonight.

Bar the Trump bit on how he has waded in Katie Hopkins has written a good article on this I think every parent can identify with

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None of us know if Charlie Gard's mum and dad are right or wrong but when it comes to a child's life and death the final decision must be with the parents. Because they are the ones who have to live forever with consequences

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Baby Charlie Gard may be tiny. At just ten months old, suffering from a rare genetic condition and acutely brain damaged, he cannot breathe for himself, see, or swallow.
Of course, he cannot talk either. It's quite possible he will never utter a single word. And yet his voice is huge. Charlie Gard, blind, utterly dependent, acutely sick, has half the world holding their breath just to make sure he takes hear his next.
At times it feels as if we are all listening, like parents hovering over a baby monitor, watching for the flicker of lights across the little screen, for the sound of soft cries or sleepy snuffling.


Cont: http://www.dailymail.co.uk/news/article-4664736/Final-decision-Charlie-Gard-parents.html
 
It is such a shame. Is there any hope? No-one over here seems to think so. America?, who knows.

Just how far do you go? There are so many questions. Yes, I feel for the parents, but what real hope does Charlie Gard have?

 
There is supposed to be a hospital in The U.S Pride who has offered to treat Charlie as they have treated a similar case some years ago. The genetic was slightly different from this one though.

I can't find the article now (I will continue to look) however there is an article about the parents whose son was saved in The U.S. He says his son would have been dead if they lived in The U.S.

Some would say the child doesn't have a life of the one who was saved in The U.S with a similar genetic condition. There is no easy answer to this one.

I think the whole world is morning with them as we look on knowing it could be our child or someone we know/love
 
Here is the article

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'If my son was born in the UK he'd be dead': US father of boy, six, who was treated by the same US doctor offering to treat Charlie Gard claims Trump has 'saved' the little boy with his 11th hour tweet of support

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The father of a six-year-old boy treated by the same US doctor offering to help Charlie Gard said today: 'If my son was in the UK he'd be dead'.
Art Estopinan, from Baltimore, claims Donald Trump 'saved' ten-month-old Charlie by offering him free care because his doctors were about to switch off his life support.
Mr Estopinan's son Art Jr was given two months to live in 2011 and could only move his eyes but six years later he can move his hands, fingers, feet and arms and is a 'strong and happy boy'.
He appeared on ITV's Good Morning Britain and was involved in a row with the show's GP Dr Hilary Jones who said the cases were different, adding: 'Sometimes real parental love is letting go'.
A furious Mr Estopinan said: 'Charlie Gard is a human being who deserves the chance to live', adding: 'What right do you have to play God? What this guy is saying is false - you sir are 100 per cent wrong'.
Charlie Gard would need Great Ormond Street doctors to waive their legal ban won in London and Strasbourg to allow him to fly to America for treatment.


Cont: http://www.dailymail.co.uk/news/article-4663824/American-father-boy-six-says-Trump-saved-Charlie-Gard.html
 
Trump shouldn't have interfered offering what could be false hope.

I think there is also a difference in the condition that Charlie has and the one the lad in America has.
 
Agrees with you over Trump Sir Dennis. I suspect it's his psychopathic tendencies that thought he would intervene. I never thought it was over care Trump interfered. It's caused more confusion which Trump lives on.

Yes there is a slight difference in the genetic DNA cell that is damaged of the little boy in The U.S to Charlie here! The medical centre in The U.S wanted to see if this treatment would work on Charlie too. It is his only hope, however will it work or not, is anyone's guess
 
In ''hopeful'' news GOS are considering new evidence through the courts

http://news.sky.com/story/great-ormond-street-hospital-applies-for-new-charlie-gard-hearing-10940914
 
It's based on unpublished data, so it's right they are looking at it.

But there was a good point made by the mum that I caught, murder is illegal, so is suicide, yet the court can decide to remove care when there's hope of a treatment.

There's no proof the kid is in pain, although it's a risk given the details, so at the very least they could trial the medication and see what happens and if proof of pain is then proveable by all means stop.

It might help others down the line.
 
Heart goes out to them but I would equally say my fist goes to those absolute nuggets who threatened both the parents and the staff of the hospital.

An absolute distraction in the news in the final week and a bit of something that's more important than those social warriors will ever be.

Their passing will never make the news, Charlie did and that's how it should be.
 
kefkat - 27/7/2017 23:20

Very very sad that it was too late to save Charlie
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Your comment suggests that the poor lad could have been saved, but the truth is he was so ill and his disorder was so severe there was no hope for him. I feel sorry for the parents, they were exploited by a lot of people, none at least by the American doctor who had a financial interest in the case and therefore claimed to have some sort of magic cure despite never even examining the medical records first or visiting the baby himself. And of course others like Trump et al who used the case for their own political agenda (I.e abolishing obamacare) or the newspapers who wanted to whip up a scandal

I also feel sorry for the hospital (and the doctors there) who have had their name dragged through the mud and have probably incurred massive legal costs for just trying to do what was ultimately right for the patient.
 
What it proves though is that you have no say over what happens to your child once you walk through the hospital doors.
 
We will never know whether it was feasible ie not. My point was his parents will live with the what if s always.

It's in cases like this only this new genetic DNA irradiation could be used. That's no use to Charlie or his parents now.

I feel for them so much. The relationship will be tested to the hilt now as they both carry a genetic which means other children could well be affected if they had more.

Heaetbreaking! I do agree Trump jumping in was exploitation. Maybe the Dr was too. We will never know as the treatment couldn't be tried
 
Fulford - 3/8/2017 23:17

What it proves though is that you have no say over what happens to your child once you walk through the hospital doors.
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Yes that is correct Fulford. It is the same in many ways of life if you happen to come into contact with other services.

I know full well that battle through my involvement with children's s.s.

I put my self in the situation with them begging for support I didnt get it. Prevention I begged for turned to crisis and you can guess the rest.

That was a battle I will never know how we won. It was a 9 year battle too get rid of them in a system that is needed but doesn't work.

Many of the same agencies would have been involved with Charlie and his parents as whom was with us. Your just a number to them.

They don't like people who fight them for the rights of the family appropriately and make there jobs harder that is for sure
 
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