The Fear
A Wise Man (once sat next to him)
25 years ago today, I had my life saving (not quality of life saving unfortunately) brain op. Life wasn't great leading up to it (you don't just have brain ops randomly you know!) but after it, everything changed forever.
Strange for me today, to think this is half my life, if you include the years the doctors fecked up before the diagnosis, then way over half my life and it wasn't as if I'd had a smooth ride before that, as I'd already had 8 major operations. But this was a new level.
Since then, every minute of every day has been punctuated with pain, fatigue and then at various levels depending on the time, brain fogs, confusion, loss of sensations in legs, hands and/or feet, legs giving way with no notice and so the list goes on (that doesn't even scratch the surface.
Punctuated by, but I'd like to think not defined by... that's the difference.
What do you do? Easy to let these things crush you, defeat you, end you.
And here comes the only reason for the post, the sermon.
You think fuck it and get on with life. At my worst times (not in a great health cycle at present) I can often sit for what seems to someone with an active 'want-to-get-out-there' type of mind an eternity (12 hours of doing nowt is a great torture for me) so I plan my next move when I'm through the flair up.
Don't miss the moments in life, don't waste a day, don't put excuses in the way of doing what you want to do and if you don't have anything you want to do, give your head a wobble and find something.
Life is short, you never know what is going to happen, so don't sit there waiting for it to come to you, get out and f****** well get it.
This went into my somewhat mixed history:
https://www.birminghammail.co.uk/sp...special-feature-meet-superhero-aston-10126529
Since then I've had two more major operations and a rushed visit to A&E due to my body deciding to go into a major spasm, no proper control of my arms and legs etc. That was (not) fun.
Did that crush me? Well, none of it made me happy. But since that article, I've also been up Ben Nevis (agony but amazing) up Snowdon (got me on a good day that one, not too bad!) and I tortured myself doing a marathon, whilst raising a decent amount for various charities and also - I'm told - inspiring others in life.
So, a lot of words all to say... don't waste your life, get up, get out, live.
Strange for me today, to think this is half my life, if you include the years the doctors fecked up before the diagnosis, then way over half my life and it wasn't as if I'd had a smooth ride before that, as I'd already had 8 major operations. But this was a new level.
Since then, every minute of every day has been punctuated with pain, fatigue and then at various levels depending on the time, brain fogs, confusion, loss of sensations in legs, hands and/or feet, legs giving way with no notice and so the list goes on (that doesn't even scratch the surface.
Punctuated by, but I'd like to think not defined by... that's the difference.
What do you do? Easy to let these things crush you, defeat you, end you.
And here comes the only reason for the post, the sermon.
You think fuck it and get on with life. At my worst times (not in a great health cycle at present) I can often sit for what seems to someone with an active 'want-to-get-out-there' type of mind an eternity (12 hours of doing nowt is a great torture for me) so I plan my next move when I'm through the flair up.
Don't miss the moments in life, don't waste a day, don't put excuses in the way of doing what you want to do and if you don't have anything you want to do, give your head a wobble and find something.
Life is short, you never know what is going to happen, so don't sit there waiting for it to come to you, get out and f****** well get it.
This went into my somewhat mixed history:
https://www.birminghammail.co.uk/sp...special-feature-meet-superhero-aston-10126529
Since then I've had two more major operations and a rushed visit to A&E due to my body deciding to go into a major spasm, no proper control of my arms and legs etc. That was (not) fun.
Did that crush me? Well, none of it made me happy. But since that article, I've also been up Ben Nevis (agony but amazing) up Snowdon (got me on a good day that one, not too bad!) and I tortured myself doing a marathon, whilst raising a decent amount for various charities and also - I'm told - inspiring others in life.
So, a lot of words all to say... don't waste your life, get up, get out, live.